A good day

 
We don't get many good days these days ...at least I don't.  But today was good.  Gotta take the "good days" when you get them; life is way too short!  It started out with my waking up just before 6:30 am.  Actually I was suppose to "sleep in" but for some reason my body decided not to.  LOL  So... I got up.  When I woke up, the first thing I thought of was to update the medical file and print out all the cancelled checks for DHS (Dept of Human Services) to take there today after Wayne's DR. appt at 11am.  I got them all done just in time for us to leave.  Hopefully  submitting these changes to DHS will help Wayne get a better medicaid insurance and not that $1804 mo. deductible he has now. The DR said all the tests (A1C, INR, Blood Pressure) were good but reminded us that he is "high maintenance" so it is important we strive to get that insurance changed.  What is "high maintenance", you ask?  Well, it is because of his disability that he is susceptible to infections and he has to be watched closely.  He still has those blood clots in his lungs and in his legs which is why he is on blood thinner, thus the INR test he has to have frequently.  The DR said he has to be watched every 2 weeks for now but later it will be once a month.. later, when the DR feels it is safer to wait a month.


I sit here and watch Wayne watch those "old" TV shows, many of them Game Shows and think about what he would be doing if he wasn't stuck in that wheelchair.  He'd be out on the football field watching our grandson's practice OR helping coach as he did for many many years.  We'd be going to movies once or twice a month.  Now when we go he has to sit in the front row.  We would be going out to eat every Friday like we use to ...we haven't done that in a while.  Having said all that, he does seem to enjoy those game shows and the judge (court) shows too. 


He doesn't remember things.  He has to be reminded frequently.  I'll be glad when the DR can get that Brain MRI for him ...we're waiting on the insurance to change so we can afford it. 


All in all, today was a good day.  I got our medical file organized and up to date.  Got the new info to DHS along with his SSD letter about his approval in November.  We stopped for lunch.  I know we shouldn't have but it was our "alone" time and thought it was worth it.





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