I know I haven't blogged in quite some time, but I (we) have been so busy going back/forth to the VA for my husband's medical care along with caring for the two grandsons we are raising. I want to start my new blogs in regard to the care of my husband, what he is going through, what I am going through, and it will also include our 2 grandsons we are raising, in addition to their father (our son) and their mother and from time to time stories about our other 3 grown children and their children. Some of you already know we have 7 grandsons and 1 granddaughter.
I also would like to invite other caregivers to "chime" in on your experiences. I am relatively new as a caregiver to my husband, only since May 2010. We can share our concerns and successes. Family and friends are also invited to stop by.
Let me start with what is happening now.
My husband, Wayne, is going to the VA tomorrow first to Detroit to talk to the Diabetes DR and we have to discuss the Diabetes Insipidous our personal Dr diagnosed him with because it is very important he gets the medicine he needs to control that, otherwise, he has enormous amounts of urine and it is impossible to deal with. Then we leave Detroit and go to Ann Arbor VA to talk to a neurosurgeon about whether or not there is anything else that can be done to better his condition of Cauda Equina Syndrome which he was left with after his back surgery May 2010. He had that herniated disk that erupted in his saddle block area and ended up with that CE diagnosis. I will blog about the results of that visit yesterday.
On the 27th, he goes back to the VA in Detroit to get an MRI of his brain. This is to determine whether or not he has the start of Alzheimers, and if so, how far progressed it might be and what we can do to slow it down. I am convinced he has this although others are telling me not to be so "negative" and maybe it isn't that. Maybe it isn't, and I'm definitely hoping it isn't, and hoping if it isn't, then there is something we can do to help him remember things.
This morning he asked me to come look at the window. When I went over to him, he pointed at our big screen TV and he was watching the news about the devastation from the tornado in MO. He either thinks the TV is a window or he can't remember what the TV is called. He then asked me "are we dead?". This isn't the first time he's asked if we were dead or not. He did that a few nights ago when there was other devastation from a tornado elsewhere. There is more examples I will address as they happen each day.
I have to go catherize him and then I'll be back.
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